December 17, 2015

1st Chemotherapy treatment

OK if you have been following me on Facebook, then you would know about the storm we encountered. If not then no worries, here is a brief description of what happened. We woke up Monday morning to almost a foot of snow. A drive that normally takes minutes, took almost 3 hours. Over 200 accidents that morning in the area. My wife drove or minivan with skill. Proud of her for that.

The first time in the chair for the chemo treatment, had me a bit nervous about the whole thing. I now know that it kinda sucks but overall it is very doable. It only took five and a half hours in the chair, which some of it I snoozed through, for the chemo. I was then hooked up to a pump for the rest of it. That would take fourty-six more hours.

We stayed the night in SLC, due to the snow. Tuesday morning was our best chance to leave. The weather was calling for more snow that night and within the following days. The drive home, with only fuel up stops and two short visits to family, took over twelve hours. The roads looked worse than I felt. So it was off to the races at an average speed of fourty-five mph!

As I sit here this morning reflecting on the days past, I find myself both humbled and joyful. Not for the cancer or chemo, but rather the life that I have lived so far. I have done many things, as I'm sure you have done too. Now I must slow down and take the time to heal. A task that will be very hard to do at times. I have began to call this period in my life, "limited edition of Kurth".  Today has been a rather troublesome day so far and it's not even eight am. I do know this (skip if you get easily disturbed), that spewing up java doesn't smell that bad! I have a feeling that this could get worse in the next few days, but I am confident that I will survive it.

December 1, 2015

The drive home from Port Upgrade...

So here I sit in the passenger seat of the white minivan.  I remember the first trip my wife and I ever took in this MV.  We were heading to Vegas to get married.  I didn’t really care for the MV then and I can say with Judgmental anguish that this white hauler of Asses hasn’t grown on me one bit.  Not in the six years since, and probably not in the next six years either.  I will give it to my wife; the MV has been good to us.  I just don’t care for MV’s.  With that said, I find it kind of weird to be writing this blog while moving at Eighty miles an hour; with my ass about two feet (at most) off of the ground.  I usually take this drive either in the Driver’s seat or over here in the Passenger’s seat half asleep listening to a mix of Metallica and Enya.  That’s right!  I did say a mix between Metallica and Enya.  If you have never heard of either Artist; then my friend you have been missing out on some good tunes.  Metallica is a group of four guys (now in their Fifties) that jam with some heavy riffs.  Enya (not sure on her age) is a Female Vocalist that usually is associated with melodies.  I listen to both artists while writing stories.  Enya’s music is what I listen to when I’m creating characters.  While Metallica’s usually inspires the tone or mood in which the story is heading.  The story that I’m working on lately is a creature feature (if you will) titled “Hawthorne’s Bend”.  If I were to describe the novel, I would tell you that it is probably something that my mother wouldn’t read.  It’s not the thought of most of the characters not surviving at the end, but rather the hell that they witness before the end of the story.  I might find the time to write some of the story while on the road, but then again, I feel like a dip shit if my wife drives the entire way.  She doesn’t mind she tells me.  I sort of believe her, since one of the rules of the road is “The Driver chooses what we listen to” and she has chosen an audio book that I haven’t paid much attention to since we started to go to Salt Lake City.
Many things have roamed through my mind while taking these trips to Salt Lake City.  Yes I have read up on my type of cancer, since HCI was kind enough to provide a lot of reading material in the binder that they gave me.  The majority of the information is a generalization of the cancer; which doesn’t end up sounding too good.  Now they have added my individual treatment information, which does shed some light on the subject.  No matter which version I have read, I still get frustrated and put it away.  Then I’m left with countless miles of pondering of what I have just read.  It doesn’t make me sad, that would be too easy of a pattern to fall into.  No!  My mind tends to get pissed off, when I can’t make a joke about something or at least attempt to turn a negative into a positive.  So then I try to lighten my mood by playing a game on my cell phone, tablet, or the road trip favorite “I Spy…”  So since I’m trying to use the blogger thing as a therapeutic source of dealing with cancer.  Then I figured I would give it a shot on the boring ass ride that I am now embarked on.
The Port implant procedure went well.  The only thing I don’t like about procedures like that one or the ones for tests; is that you have to fast for several hours.  It does however make that first drink of whatever taste so good, or that first bite so damn wonderful that you just want to jump for joy, break into a musical dance number, or just simply quiver with excitement.  Which reminds me that I should explain just one of the new ordeals that I am forced to undertake.  Eating!  Now I know that I have mentioned eating in a prior post, but I don’t believe that I went into too much detail.  So without further procrastinating, let’s begin.
Eating use to be one of my favorite things to do.  If you have seen the pictures taken of me within the past few years you would have noticed.  Heck, even my nephews would ask me when I was due!  If you saw a picture (which none exists that I know of) of me today, one might think CRACK-HEAD!  Trust me, right now I am laughing, hell I think I even got a little snot on my screen.  The diet plan that I am on (as Steven puts it) is doing wonders.  I tell him that getting cancer to lose weight is just as impressive as taking chemo so I wouldn’t have to shave my head.  A joke he doesn’t quite get, but he laughs and says “Awe-Kurf” just the same.  I have lost over seventy pounds in under a year, with most of the weight lose occurring in just a couple of months.  I try to eat like I use to, but it hurts too damn much.  Imagine eating till you can’t stuff anything else into your mouth and it gets backed up!  That is what it feels like with just one tiny bite.  You want to puke, but you can’t.  So you jump up off your ass and start jumping up and down, pounding on your chest.  If someone saw that through my dining room window, they would probably say “WTF!” and wonder why that looney isn’t in the State Hospital.  The food feels like it is stuck, which in truth, it is!  Even though it is only stuck temporarily, it still hurts like a “MF!”  You would think that after a few months of that, one might just try to eat differently.  Well you would be right.  I have changed my eating habits.  Heck I was even on a liquid diet for a while.  It didn’t matter.  Everything just hurt.  Now it’s take a bite, chew or squish, swallow, grab your chest, cringe, drink some water, swallow, cringe, and repeat.  That usually consists of every meal or snack.  Snack!  A sore subject to say and take quite literally, if you catch my meaning.  Finding the strength to chow down on a snack is just as hard as it is for any meal.  I often look through the cupboards and begin to think of what would taste so good that I’m willing to suffer for it.  Now I wish it was the same kind of suffering that a lactose intolerant person felt after a bowl of ice cream, but it’s not even close.  The squirts would be a welcome gesture!  That’s all I’m gonna say about that.

Well it’s time for me to go.  The sky is getting dark and I don’t want to bother my wife driving skills with a glare from my seat, maybe a nasty stench or a slap happy comment, I want to get home safely.

November 29, 2015

The Night before the Port

So folks here we are again in Salt Lake City.  Tomorrow I am have and IV Port implant surgically installed.  I'm pretty curious on how this port thing will work.  Interesting concept for now.  I'm sure in time it will either bug the shit out of me or that I might even just forget about the little bugger.  Time will tell, and I will be sure to inform you in the usual and most dramatic manor that I can  while on pain medication.  Speaking of pain meds, I am grateful for spell checker...LOL.

When we left home there was quite a bit of snow on the ground.  The South Pass road was pretty dry.  I-80 was pretty good to.  Kind of a shocker after the snow storm the area had.  So a huge thanks goes out to the Plow Truck Drivers.  Without them we would all get stuck, either on the road or in an area that we would just love to haul ass from!

My son took his mother and I to the second part of the Hunger Games movie tonight.  We saw it in an IMAX theater.  The seats were comfy, comfy, and squishy.  The movie was good.  He even did a little Christmas shopping for some folks back home.  Steven has such a big heart.  Most of the day he kept checking on me, making sure that I was OK.

November 25, 2015

Learning the ropes

When my wife and I came to Salt Lake City, we began to learn our way around.  Not only did it take a few wrong turns to decide that my wife would be a better driver in the city, but we also learned the (HCI) Huntsman Cancer Institution layout as well.  The process of learning what is what began.

We found out that my type of cancer is called Esophageal Cancer, and that mine is in the third stage.  It has spread to other organs and to the abdomen areas lymph nodes.  My abdomen has been hurting a lot lately and now we know why.  It is still hard for me to eat or swallow, and the reason behind that is that the tumor is bigger than I thought it could be and that when it hurts to swallow; it is because the tumor is agitated and swollen.  I do not have to keep on a liquid diet (Thank God!).  I can eat what I want, just in smaller amounts and more often.

With the chemo treatment that I will be taking (FOLFOX), I need to maintain a 3,000 calorie diet just to keep at the weight I am currently at and possibly gain a few pounds.  I shouldn't loose any hair, not that I had much to loose.  I thought that the chemo therapy would at least mean I wouldn't have to shave my head for a while.  I may be wrong on that.  According to studies on this type of treatment; the first three days isn't all that bad.  It's day seven through fourteen that should suck major ass crack dilemmas.

November 16, 2015

Diagnoses Day

The day that I was told that I have cancer was a day that I'll never forget.  Watching the tears well up in my Wife's eyes as she sat there trying to be strong; hurt like hell.  Hearing the joy of a Friend's voice, that I hadn't talked to in a while, drain and turn into sadness; just plain sucks.  Seeing the pain in my Family's eyes as we sat there talking about it; well let's just say that I haven't found a word to describe it yet.

That day will be etched into my memory forever.  Not because the doctor told me that I have cancer, that my friends is something that I can live with.  I kind of have to.  I will never forget it because of the pain it brought to those I hold dear.  It was also the day that I realized that I am truly blessed.  Blessed to have the people in my life that I do.  I realized that I have a lot to live for and that giving up is not an option.  Is it weird to find peace and comfort on a day that your loved ones found sorrow?  For me, I found peace within because I knew that I was loved; I found comfort because I knew that I was surrounded by those that actually cared about my well being. 

That was on November 6th, 2015.

I know that the near future will be tough.  I'm not a fool, I know it will be hard.  Not just for me but for them even more.  I may be the one that cancer is trying to kill physically, but it is also trying to kill my loved ones emotionally.  I believe I can make it through the treatments, getting sick, and feeling Death's cold hand on my shoulder.  I don't know how my Family will be able to do it, but I know that they will.  I have faith in them.  They are some of the strongest people I have ever met.  They have always pulled together in times of need.  When times get tough, they put aside their petty differences and reconnect to find a passage through the dark woods ahead.  They may shed some tears along the way.  I know that there will be laughter, that's just one of the ways my Family and Friends deal with hard times.  Together, I know we can make it through this.